THE BEST OF TIMES WITH THE WORST OF TIMES

Who would think that there could be anything good about having cancer?  Empty nest no more. Since Kirby and Owen have come home we have had some extraordinarily good days, with only a modest amount of bickering. Days of feeling better and more alertness. We have walked in our beautiful Capitol Hill neighborhood, enjoyed the early fall weather, eaten alfresco at some of our fine and favorite restaurants, been to Friday night services at Temple Micah, had our own Havdalah, carved pumpkins in the back yard with Zengo, been visited by friends and relatives, and made and received over two thousand origami cranes. Big cranes, little cranes, teeny tiny cranes, shiny cranes, solid colored cranes, floral cranes, pattered cranes of every sort, cranes made from menus, calendars, newspaper, legal briefs, and cranes that have come home to roost. The cranes fill our house with color and good feelings, they are everywhere and we are ready for another stringing party, (hint hint).

Kirby has joined the Green Team at Temple Micah, went to a meeting last Sunday, bringing her passion and expertise to the committee with ideas and plans to help the TM community become greener and better educated about sustainability. After all, this is what she does professionally.

Kirby has successfully completed her 2nd of maybe six planned rounds of chemo and is mostly doing well.  She is still on round the clock pain and nausea meds and until yesterday they were working very well.  Yesterday was a bust. But today a comeback.

Kirby’s numbers are up.  Her blood test show great numbers for immune system. She continues with David Walls Kauffman our Capitol Hill chiropractor. http://www.capitolhillchiropractic.com/home.php.  We’re trying to eat dark green foods every day. And shed continues with her meditation, guided imagery and her holistic approach to healing.

We live in what I have come to call chemo world. It is like Jewish camp or through the looking glass.  Once you are inside, the outside no longer exists and the clocks run fast and slow at will.  When Kirby is hungry we eat.  She gets Jonses i.e. cravings, and says I would like a this or that and we get a this or that and have a lovely meal together. Today it was bagels, lox and cream cheese at about 11:00 am after a quick bike ride (Robert not Kirby) to the market for the bagels and the lox. Then take in Indian for dinner tonight.

We are making plans to close out her NYC apt.  When she goes back we think she will buy a studio apartment, all of this negotiating leases every year is a pain.

 

You wonder why we haven’t written, you see we’ve been busy.

Kirby has an appointment next week (i.e. the week of the 31 October) at Memorial Sloan Kettering in NYC, So it looks like we’ll be in New York Tues through Saturday, seeing doctors and working on closing her apartment. The following week (i.e. the week of the 7 November) if all goes well, she starts chemo round three.

Save the date: Sunday December 4th  from 1:00 to 4:00.  Kirby’s cousin Mark, http://www.melliotgreene.com/ and family are coming to DC and Mark will be doing a book signing of his book Cutthroat at the Corner Store.   http://www.cornerstorearts.org/  and we are doing the refreshments so look out and get ready.

Advertisements

11 Comments (+add yours?)

  1. Ellen Passel
    Oct 28, 2011 @ 03:40:36

    Glad you are doing well. Was a bit concerned that you hadn’t posted in a while. Sounds like Cranes World. Frequent little meals might help with the nausea. Zofran is great, but I find it is easier to keep ahead of the nausea if I don’t have an empty stomach for too long. (you don’t have to eat more–just spread it out.). Almost like being pregnant.

    Good luck at Sloan. Ask them for a copy of their patient notes on Kirby. That way you don;t have to remember everything–you can read it.

    Reply

  2. Nancy and Ken
    Oct 28, 2011 @ 04:57:08

    It’s a great relief to hear that things are going well and that the whole family has been able to enjoy so many good moments. The cranes are doing their job! Nancy and Ken

    Reply

  3. Deborah Edge
    Oct 28, 2011 @ 12:35:53

    Great to hear how well you are doing- keep it up. Hope that your trip to NYC goes well. Deborah

    Reply

  4. Ann
    Oct 28, 2011 @ 13:04:37

    So glad to hear things are going well. Great to see Kirby and Robert at TM services last Friday and to share such a special service with them! Given schedules, it looks like we are not going to see you before we leave for India on the 1st of November. We will come visit when we return. Best, Ann and Steve

    Reply

  5. Jess
    Oct 28, 2011 @ 13:58:01

    Hi Kirby! If you are in New York between November 21 and January 2, the American Museum of Natural History has an origami tree for the holidays- the tree is made of origami creatures!

    http://www.amnh.org/calendar/event/Origami-Holiday-Tree/

    Reply

  6. Olya
    Oct 28, 2011 @ 14:03:31

    So great to hear you’re doing well! Let me know when you can meet up in NYC, and if you need any help while you’re here…

    Reply

  7. Jan Greenberg
    Oct 28, 2011 @ 17:38:41

    A crane stringing party sounds lovely! I haven’t yet folded a crane, but I did finally get origami paper 🙂

    Love the update and all the good news it contains! Am still hoping to stop by tomorrow afternoon (in spite of the somewhat dire weather reports) and looking forward to seeing everyone …

    love, Jan

    Reply

  8. Milton, Judy, Katie and Samantha
    Oct 28, 2011 @ 21:03:08

    We are so happy to hear that the 2nd round of Chemo. is behind you and that despite everything else, that you sound positive, energized and empowered to keep going full steam ahead. Yeah! Kick that cancer, you know where….. I hope all goes well in NYC and let us know when you are going to have the crane stringing party, so we can come and help out.
    All our best,
    I continue to keep you in my prayers and close to my heart.
    Judy

    Reply

  9. Anna Liebowitz
    Oct 30, 2011 @ 19:53:35

    If you have time, I’d love to meet you in NY, but totally understand if you’re too busy. -Anna

    Reply

  10. Robert, Alex and Rebecca
    Oct 31, 2011 @ 12:33:58

    We love you, Kirby. Rebecca, Alex and I look forward to seeing you soon. We are all going to figure out how to fold cranes this weekend.

    Love,

    Robert

    Reply

  11. judi van gorder
    Nov 06, 2011 @ 23:01:56

    Glad you are doing so much better. Did ya get the cap I sent? Hoping it will keep you warm with the colder months ahead of us. Love and prayers. Judi and Del

    Reply

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

%d bloggers like this: