News from NYC

We arrived safely in NYC (by green train: “rail consumes less energy than cars or air travel”) on Tuesday, 1 November and Kirby’s apartment was waiting for us. We had a good consult at Sloan Kettering on Wednesday. It was clear they had done their homework, read all her files and histories, as well as Judith’s six pages of footnoted questions from the research she and her home team have been doing. They concur with Kirby’s current treatment plan and say it is the best available and it is a balance of treatment and quality of life.

 

Part of the corporate culture at Sloan Kettering must be “nice.” From the concierges to the doctors everyone was nice and no one was too nice. They got it just right. (Free coffee: mocha, espresso, cappuccino etc., saltines, and honey grahams in the waiting room. The right stuff for chemo side effects.)

 

For those of you who haven’t seen Kirby lately, she appears to be responding very well to the chemo regime and a lot of very proactive management of pain and nausea, exercise/activity/movement/walking… (AND cranio sacral therapy, chiropractic, healing hands, aroma therapy, lots of magical thinking, cranes, and prayer) plus amazing community/friend support. She is stronger (KirbyStrong) and in less pain now than she has been since this whole thing started in mid-August. After Kirby’s 3rd and next (starting Monday the 7th) round of chemo they will take a scan to see if the tumors are shrinking, but for now the plan is a total of six rounds of Cisplatin/Etoposide chemo, then an assessment.

 

In addition to seeing doctors, we have been busy eating, visiting with K’s friends, and packing up the apartment. Owen left on the 8:00 am train back to DC this morning (Friday, 4 November) with two very big and heavy suitcases filled with Kirby’s winter clothes and a few other things. It is a good thing Owen is hardy, or as Joel has dubbed him “Mountain Man,” because those suitcases really are big and heavy. Kirby, Judith, and I return to DC Saturday afternoon, the 5th of November. (By Acela on the carpe diam express.)

 

 

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3 Comments (+add yours?)

  1. Becca
    Nov 09, 2011 @ 03:24:42

    6 pages from the research…I’m impressed! Kirby, glad to hear you are feeling stronger (but I’m not surprised!) 🙂

    Reply

  2. Nancy J Feldman
    Nov 10, 2011 @ 13:03:19

    Can’t believe Kirby has me “blogging” – never did this before!! Great website and very informative updates – it sounds like you have all the bases covered. You are in our thoughts and prayers every day. Be well.

    Nancy and Cary

    Reply

  3. Cary Feldman
    Nov 21, 2011 @ 17:41:52

    Yes, to follow up on Nancy’s post, I have announced or recited Kirby’s name in all of the Mishberachs that have been chanted when I have been at Shabbat or morning minyon services. And will continue to do so till she is better. KirbyStrong!

    Reply

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