We have good days and blotto days.

mostly,  news on the vomit front…

15 november 

We have good days and blotto days.

(Pain, (thank g-d) has been under control since leaving the hospital. As a matter of fact, she has been reducing overall levels of pain meds, slowly. Any reduction is doubly good because she has been on these opiods long enough that she has developed a tolerance for them so a REDUCTION is a double good sign.)

Nausea is now the major issue we’re grappling with. It’s a learning curve. “Try this…” “Try that…” from the doctors but we hesitate to trade even imperfect nausea control for possibly worse.

She has thrown up so much in the last two months Robert says she has it down to a science. Discreet barfs in taxi cabs, on the train, in the living room, much of that is thanks to the best barf (convenience) bag ever made by GKR industries, Inc. http://www.gkrindustries.com/Convenience.aspx .  We like Model Number 100HP/7000HP which includes the hand protection sleeve…A must for every car and a blessing for those who have the need.  Barfing with dignity if there is such a thing.

It has been pretty well under control since an ArtWednesday she spent in bed, barfing, and sleeping. Then, a Saturday following also spent in bed, barfing, and sleeping while dear friend who had come down from NYC to visit instead visited (and had a G & T!) with Judith and other friend, in town from Ca. for a visit to GW and a friend.

We discovered from those events that she can’t miss a dose so one of us is always up and advisory at 2 am and 6 am pills, the ones she’s most likely to sleep through. From our NYC trip we also discovered that NYC taxis can make her barf. As can excessive excitement about a Five Guys burger with a soda…Bustling can lead to barfing…

So, we continue to refine the dos and don’ts to try to minimize barfing.

Just yesterday Judith found out (apparently Kirby already knew this) that spitting, as in mouthwash or after toothbrushing, can make her barf…

18 november

We got and installed an anti-nausea patch on Tuesday and, knock wood (love that magical thinking) it seems to be working. Hesitate to say anything as it might jinx us, but no barfing for five days. Very good, indeed. And have ditched the 2 am dose, so far so good.

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4 Comments (+add yours?)

  1. Allison
    Nov 20, 2011 @ 13:29:17

    Sending love, as ever, and I vaugly recall little kid mouthwash one can swallow, in case the barfing makes a comeback.

    Reply

  2. Alan Gordon
    Nov 20, 2011 @ 16:07:47

    Love the anti nausea patches. I don’t getting nauseous in NY cabs is pathological–it happens to me all the time. Remind me to tellyou the story about my mother’s car sickness. see you this afternoon. Alan

    Reply

  3. Ilona Klein
    Nov 20, 2011 @ 17:37:57

    Continued reduction in pain meds … excellent news. The anti-nausea patch sounds hopeful cause there is really no upside to barfing.

    Nikki took Elijah to a Grateful Dead (living members and some new) concert in Chicago on Friday night … he sat next to a shirtless, middle-aged, totally tattooed, beer-bellied guy … 7 1/2 year-old on a road trip … great adventure!

    Reply

  4. Veronica
    Nov 21, 2011 @ 20:41:48

    Big hugs to Kirby. Nausea is the worst, I am keeping fingers crossed the patch continues to help.

    Reply

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